Tazymae
Kentucky
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Joined: 09/01/2011
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Maybe I should post this in the cook's corner but this is a medical condition. My husband has kidney disease. He is not on dialysis yet. Maybe far down the road. Anyway, Does anyone out there travel with someone with KD? If so what foods are " kidney friendly" I know, I can look it up but it is a little different when you are on the road and you want to eat everything new that you see and haven't tried. Anyway thank you
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skipnchar
Topeka or somewhere else
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Joined: 12/17/2003
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Here is a link to an article which recommends a diet low in phosphorus.
http://www.mayoclinic.com/health/food-and-nutrition/HQ01212
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midnightsadie
ohio
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Joined: 01/07/2008
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my daughter had kidney transplant 13yrs back , she can pretty much eat what she wants, tell him to look up the kidney foundation and you,ll get lots of help. she does as she wants puts more miles on the rv than I do. on the foundations web site you,ll see a blonde haired blue eyed gal with her lab,s .thats her.
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Tazymae
Kentucky
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I was ok with all the foods not to eat until I came across substituing hard candy for chocolate.....Get a grip
Thanks Skip
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Golden_HVAC
Fulltime, CA, USA
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Joined: 08/19/2003
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Hi,
I had a friend that traveled around in his RV for several years, even while on dialysis. They decided to full time once he retired, and traveled a couple of years before he started dialysis. They just make arrangements for a hospital to take care of him in the next city they visited.
It is easy enough to do once you are in the swing of things, and you just do what has to be done. Lucky for us, we are not restricted to just one hospital, they have them in most small towns all across the country, or at least within 100 miles of everyplace that I would want to go visit!
Fred.
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raindove
Pennsylvania
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Joined: 01/29/2011
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Keep the protein limited. I think they told my husband 4 oz a day. That includes beans, nuts, meat, milk products, etc. Protein is hard on the kidneys. If he takes care of himself and follows the diet, theoretically he should be able to maintain his remaining kidney function longer.
Limit the salt intake - buy frozen veggies instead of canned. Salt difference is phenomenal between canned and frozen.
No caffeine -- or limited.
My husband had a problem with limiting protein and didn't listen. He has been on dialysis now for over a year. He's 55. He's on the kidney transplant list. but it will be years before he is offered a kidney.
One thing that made me nuts was he kept putting off having a fistula made surgically. The fistula has to heal and develop for a couple of months before they can be used for dialysis access. Of course, he put it off too long, and they ended up putting a tube in him. It went into his jugular vein and the other end went down into his heart. We were told that 50% of the people who get an infection in those things,die from it. I was not happy that he didn't prepare ahead of time.
We had to wrap that thing up in saran wrap for him to shower. Just knowing the risk made me crazy. I was never so happy as the day they took that thing out. I would suggest having the fistula done when the doctor says it is time.
Whatever hits the fan will not be evenly distributed.
Wanda
1998 Fleetwood Bounder
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D.E.Bishop
Eagle Rock, CA
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I hope this doesn't offend but kidney function and disease in mammals is pretty simular. My ca had cronic renal failure and the Vet put him on a low ash diet. Ash is where the phosphorus comes from. He was on the diet for about 6 years or more and the last four years I had to hydrate him every other day. Try that with a cat on a three month trip to Alaska. Any way, both the DW and the Eldest DD had kidney surgery for a birth defect, they have to watch their diet too even though their numbers are normal since the surgery.
Can't help with the diet but I can say a little prayer every so often for you and the hubby.
"I travel not to go anywhere, but to go. I travel for travel's sake. The great affair is to go". R. L. Stevenson
David Bishop
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FOREVER FREE
Manchester, TN
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Sorry to hear about your husbands kidney condition but it sounds as though they may have caught it early enough to treat him and keep him off diaysis for as long as possible. I was first diagnosed about years ago and rated at stageIII at that time. With proper care by a great Nephrologist and change of diet I was able to put off dialysis until last Oct. I can't stress enough the importance of getting with a good Nephrologist and following their instructions. Yes, he'll need to give up certain items, way too many to list here but if he goes into it with the proper mindset it be easier.
Once you get into one of the many kidney websites you will find that there are many substitutes that you can use to replace a lot of the foods he'll need to avoid, such as I drink rice milk instead of regular milk. If he is a meat and potato guy potatoes may be one of the hardest things for him but he doesn't have to give them up all together. Here's the way to "dialyze" potatoes and other vegetables for use....
1. Cleen, peel and thinly slice or chop the vegetable.
2.Cover vegetable with water and soak for 1 hour (potatoes need to be soaked for 4 hrs.)
3. Drain and cook the vegetable.
Watching his sodium and fluid intakes are paramount to controlling this disease. When I was first diagnosed and told what I needed to do to postpone dialysis I thought it would be impossiible to give up all the "good stuff" but it didn't take long to realize that there are really good alternatives which make it easier. We became label readers at the grocery store and choose items that fit our needs. Believe it or not turkey sausage tastes as good as pork or beef and is much healthier.
raindove brought up a good suggestion concerning a fistula when and if the time nears that dialysis becomes necessary. His Nephrologist will know when to get one formed.
As for traveling, it's definitely possible even though it may take a bit of preplanning on your part but don't let it run your life.
Best of luck to both of you and it appears he has a wonderful wife to help him through his future.
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Wea-DetChief
Whereever we are parked
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We full time and I am on dialysis that I do at home at night(Peritoneal Dialysis). They deliver supplies every two weeks to where ever I tell them.
Richard
AKA Richard & Debbie Mallory
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