Good Sam Club Open Roads Forum: Took CPAP Machine Back
Open Roads Forum Already a member? Login here.   If not, Register Today!  |  Help

Newest  |  Active  |  Popular  |  RVing FAQ Forum Rules  |  Forum Help and Support  |  Contact

Search:   Advanced Search

Search only in RVing with Disabilities and Ge...


Reply to Topic  |  Subscribe  |  Print Topic  |  Post New Topic  | 
Page of 4  
Prev  |  Next
Deen

Vancouver, WA

Senior Member

Joined: 12/07/2000

View Profile



Good Sam RV Club


Posted: 10/18/09 12:55am Link  |  Quote  |  Print  |  Notify Moderator

My third CPAP went for 15 years, the Dr. had never seen one with that many hours. It was so old that no one on the sales team from the place I got it from had ever seen one. Hope my new one lasts that long!

OP, actually you don't sleep well without the CPAP, that's why you needed it! I've tested well into the danger zone for oxygen level on every sleep test I've taken and it does make a difference.

I should add: I had the surgery first some 20 years ago, didn't help and I wish I had never had it done. I choke very easily and a trip to the dentist is a real problem. They have to be very careful to keep the suction going or I choke.


Deen - Vancouver, WA

'02 Dutch Star 4090 (41+', triple slide)
435/1200 ISC Cummins/Banks PowerPak
'08 Honda Civic/dolly
'05 Honda Odyssey/dolly
NRA Benefactor and Recruiter
FMCA f47302s, Life Member: Good Sam,
Newmar DP Owners Group
52nd yr of RV'ing



Bumpyroad

Virginia

Senior Member

Joined: 12/01/2005

View Profile


Offline
Posted: 10/18/09 05:04am Link  |  Quote  |  Print  |  Notify Moderator

Deen wrote:

snip
I should add: I had the surgery first some 20 years ago, didn't help and I wish I had never had it done. I choke very easily and a trip to the dentist is a real problem. They have to be very careful to keep the suction going or I choke.


my friend who also uses CPAP at first looked into the surgery, but after checking it out decided against it.
bumpy





paulin

No. CA

Senior Member

Joined: 08/28/2003

View Profile


Offline
Posted: 10/28/09 10:52pm Link  |  Quote  |  Print  |  Notify Moderator

I just finished the second night of a sleep study. First night showed mild apnea, 13.5 on the scale and some leg movements. The second night incorporated the CPAP machine. Don't yet know if they are going to recommend a CPAP but would bet they will.

The second night, first using a nose pillow and then later a mask, was awful! Whenever I yawned or coughed or opened my mouth the air would rush from the nostrils through the throat and out the mouth and I felt as if I was drowning. In my case I think it would be very difficult adjusting to a CPAP and getting a good nights sleep.

I'm exceedingly tired and sleepy all the time, but cannot understand how only mild apnea would cause so much fatigue.

Paul


Paul & Linda
2007 Jayco Seneca HD 34SS Duramax
2005 Saturn VUE
"Monty", "Maggie" & "Murphy" the mighty Shih Tzus
FMCA #F375077



Bumpyroad

Virginia

Senior Member

Joined: 12/01/2005

View Profile


Offline
Posted: 10/29/09 05:35am Link  |  Quote  |  Print  |  Notify Moderator

paulin wrote:

I just finished the second night of a sleep study. First night showed mild apnea, 13.5 on the scale and some leg movements. The second night incorporated the CPAP machine. Don't yet know if they are going to recommend a CPAP but would bet they will.

The second night, first using a nose pillow and then later a mask, was awful! Whenever I yawned or coughed or opened my mouth the air would rush from the nostrils through the throat and out the mouth and I felt as if I was drowning. In my case I think it would be very difficult adjusting to a CPAP and getting a good nights sleep.

I'm exceedingly tired and sleepy all the time, but cannot understand how only mild apnea would cause so much fatigue.

Paul


yep, that initial feeling that you are a hot air hair dryer with the air rushing out of your mouth is unusual. occasionally now I open mymouth just to check on whether the thing is pumping out air or not.

My friend who uses a mask said he tried a nasal pillows one and felt like he was being suffocated. I prefer the freedom of them.

Did your machine have a ramp feature? I was told I wanted that, but only tried using the ramp once, I guess the theory is that you will be asleep by the time it ramps up to full power. I laid awake just waiting for it to do so.

bumpy

RETIREDHSTEACHER

EASTERN L.I.

Senior Member

Joined: 03/15/2005

View Profile


Offline
Posted: 10/29/09 05:36am Link  |  Quote  |  Print  |  Notify Moderator

paulin wrote:

I just finished the second night of a sleep study. First night showed mild apnea, 13.5 on the scale and some leg movements. The second night incorporated the CPAP machine. Don't yet know if they are going to recommend a CPAP but would bet they will.

The second night, first using a nose pillow and then later a mask, was awful! Whenever I yawned or coughed or opened my mouth the air would rush from the nostrils through the throat and out the mouth and I felt as if I was drowning. In my case I think it would be very difficult adjusting to a CPAP and getting a good nights sleep.

I'm exceedingly tired and sleepy all the time, but cannot understand how only mild apnea would cause so much fatigue.

Paul


Paul,

What you experienced was normal. It may take you 6 months to find a mask which works for you. It's not an easy road but once you get CPAP to work it will change your whole life. The alternative is that you will continue to be exceedingly tired and sleepy all the time and your organs will slowly deteriorate because they are not getting enough oxygen.

Join CPAPTALK.COM and read, read, read.

Ed


[b/]2005 Sierra 2500 Duramax HD 4WD EXT Cab SLT
2006 Jayco Eagle 29RLTS
TTT Mirrors
Pullrite 16K Superglide
Garmin 7200 GPS
BrakeSmart
Mor-ryde Pin Box
60 gal. aux. fuel tank-toolbox combo
Porta-Bote- RV brackets on side of RV
and many more additions.

rvten

Crossville,TN

Senior Member

Joined: 11/30/2000

View Profile



Good Sam RV Club


Posted: 10/29/09 02:36pm Link  |  Quote  |  Print  |  Notify Moderator

As an update yo my OP.
My doctor was a little upset with me. She made an appointment with the sleep doctor for me. I go see him Nov 12th. Will see what we can work out.

Someone mantioned the ramp. My unit had it. I turned it off and went right for the full flow. Ramp took to long for me.
My unit also had a humidifier. That I also felt was not needed. With it on and cold air coming into the bed room caused too much moister to build up in the hose.

Was told I realy only need that feature in real dry weather.


Tom & Bonnie
Crossville, TN.
Aspect 29H 2008
Class C past Class A owner
Pontiac G6
There is NO such Thing as a B+


tvfrfireman

Portland, Or

Full Member

Joined: 08/21/2006

View Profile


Offline
Posted: 10/29/09 03:21pm Link  |  Quote  |  Print  |  Notify Moderator

My biggest fear in life now is a power failure. I could not survive without my cpap. My father sounded like rvten but is now compliant and wearing his machine every night. His stubborness cost him the health of his heart. It took the heart damage and COPD and 3 strokes to wake him up. Even if the cost was six thousand dollars that is cheap compaired to what is to come. I sure don't want to end up incontinent in my bed at the Belair Nursing Home.

w6pea

Lost in the Smog of Mexifornia

Senior Member

Joined: 09/08/2006

View Profile


Offline
Posted: 10/29/09 03:47pm Link  |  Quote  |  Print  |  Notify Moderator

tvfrfireman wrote:

My biggest fear in life now is a power failure. I could not survive without my cpap. My father sounded like rvten but is now compliant and wearing his machine every night. His stubborness cost him the health of his heart. It took the heart damage and COPD and 3 strokes to wake him up. Even if the cost was six thousand dollars that is cheap compaired to what is to come. I sure don't want to end up incontinent in my bed at the Belair Nursing Home.



Been there done that (power failure) I have a battery pack. I also used to snore so loud my neighbors complained. No Joke!!!


Remember "Without Truckers America Stops"
It's too late to save your shoes..so roll up your pant legs
"When all else fails..Amateur Radio"
I need some more Coffee&Old Bushmills
Semper Fi

ShapeShifter

Buffalo, NY

Senior Member

Joined: 04/03/2007

View Profile



Posted: 10/29/09 03:51pm Link  |  Quote  |  Print  |  Notify Moderator

rvten, you have my sympathy.

I used a darn CPAP machine for six months. Hated every second of it. I tried it with ramp and without. With humidifier and without. Every style of mask and nasal pillow they had. Even tried it with a chin strap to keep my mouth closed. The big problem is that I have trouble breathing through my nose -- I always felt like I was suffocating.

After six months I had enough. I had surgery to remove my tonsils, which was the real cause of my problems. They were normally so large that they would close off my throat at night when my muscles relaxed. After getting them out I haven't snored or stopped breathing since.

It was a tough surgery, and I pretty much had to relearn how to eat and swallow again since my throat geometry was so different, but I don't regret going through that at all.

I'm glad they work for so many, but I can certainly relate to and sympathize with those that just can't get comfortable with those infernal machines.


2007 Holiday Rambler Endeavor 40PDQ
400 ISL Cummins/Allison
2002 Chevy Avalanche toad

Inside: Him, Her, and a pack of little furballs...


RETIREDHSTEACHER

EASTERN L.I.

Senior Member

Joined: 03/15/2005

View Profile


Offline
Posted: 10/29/09 06:09pm Link  |  Quote  |  Print  |  Notify Moderator

tvfrfireman wrote:

My biggest fear in life now is a power failure. I could not survive without my cpap. My father sounded like rvten but is now compliant and wearing his machine every night. His stubborness cost him the health of his heart. It took the heart damage and COPD and 3 strokes to wake him up. Even if the cost was six thousand dollars that is cheap compaired to what is to come. I sure don't want to end up incontinent in my bed at the Belair Nursing Home.



Check this out

For $120 you won't have to worry about a power failure any more.
I just got one and will use it at home and in the 5er. Now I can stay overnight at Flying J, etc. It has a lot of features.

Ed

Reply to Topic  |  Subscribe  |  Print Topic  |  Post New Topic  | 
Page of 4  
Prev  |  Next

Search:   Advanced Search

Search only in RVing with Disabilities and Ge...


New posts No new posts
Closed, new posts Closed, no new posts
Moved, new posts Moved, no new posts

Adjust text size:

© 2009 Good Sam Club | Terms & Conditions | PRIVACY POLICY | YOUR PRIVACY RIGHTS